Thursday, October 24, 2013

A little Kayliegh Update with a Spiritual Twist :)

I need to update Kayleigh's first few months of life on here with pictures and more fun things....but  I will do that in the next post.  I wanted to get this one written first. :)
Today I am going to write about my journey so far with my latest born....Kayleigh Jean. :)  I was reading one of my friend's blog posts, who had a baby just a few days before Kayleigh was born.  This is what she wrote

I love how I truly can fix all her problems so quickly and so easily.         Feed,change,snuggle. That is it.                                                                              Things really are so simple and perfect and I am cherishing every single moment.

I had to kind of grimace and sigh because I sure did not have and have not had the same experiences with my baby.  Things sure have not been simple and perfect since she was born and try as I might there were many times that I wasn't cherishing every moment. ha ha To be quite honest my life has been pretty darn difficult since she was born.  Sure, I have three kids 4 years old and younger.  That in itself has kept me busy and tired.  However, it was Kayleigh that was making things difficult.  She is 5 days shy of 3 months old and has spent hours almost every day and night crying without comfort until yesterday.  I am still not sure if she will be better, but I am hoping. :) If only she were the normal baby crying for the normal baby reasons.  I tell you what....there is nothing worse than having your tiny baby screech and cry in your arms from what seems like pain....for hours...and there isn't anything that you can do to fix it.  And this isn't just some weird random day or evening.  This is every day and night for months.  The normal baby fixes don't work.  You feed her....she pulls away and cries still.  Or eats ferociously only to pull off, burp and scream and cry again.  Snuggle her?  I tried snuggling, rocking, swinging, swaddling, etc.  She still screamed.  Change her diaper? Constantly, way more than my other children....yet she still cried. 
Our house is just one floor and you can hear pretty much anything from any room of the house...if it is loud enough.  So I have two other sleeping children  and a husband who has to work the next day...and a screaming, crying baby that I cannot get to stop in the middle of the night.  So I had to go into my walk in closet every night and just try my best to console the inconsolable baby for hours on end.  Pretty much every night for the first month and half of her life.  She would scream and cry and I would cry.  I would often plead to Heavenly Father, to please bless this crying baby.  Some comfort was probably given to her, but never complete relief.  In fact there were two nights in particular that she had been screaming on and off for hours and my husband finally broke down and gave her a blessing and she stopped crying immediately and would fall asleep finally.  Giving us both some much needed rest.  So I know Heavenly Father was looking out for us...the priesthood blessing had proven that...but pleaded as I would every day that he would fix it...he would not fix it...he would not fix her. She would cry most often in the night hours....but her days were not too much better.  Unless she was knocked out cold asleep.....she would be fussing.  Her moments of awake and being content would only last minutes in duration.
Feeding her became extremely stressful.  My back was in knots because every time I had to feed my newborn I was a tense ball of stress.  She would pull away, choke mid way through, need burped 4-5 times in a meager two ounce bottle.  She would fall asleep during a bottle to wake up screaming crying a few minutes later to eat again.  Sometimes it would take two hours to eat a two ounce bottle because of this constant struggle.  Hard times for sure!
Now, I had dealt with a crying baby before.  When Noah turned 1 month old he cried and cried too.  We discovered two things...he had a milk allergy and he had acid reflux.  We put him on a hypoallergenic formula and the doctor prescribed him liquid zantac.  He was good to go after that.  Sure he fussed, but normal baby fussed after that, and we were set.  So he was hard for a good 4 weeks but was cured.  So I had dealt with this before.  I breastfed all of my babies.  But when Noah seemed to be effected by everything I ate, I had stopped...not wanting to be the reason my baby cried.  So the same with Kayleigh...a month into her crying the doctor gave her zantac, like Noah for acid reflux.   It did help....but did not completely cure her like it had for Noah.  I stopped breastfeeding feeling heartbroken,  and put her on the same hypoallergenic formula that cured Noah.  Again...it did help, but did not cure.
She still struggled eating, seemed extremely uncomfortable from stomach pains,  burped and farted in excessive amounts, and cried and fussed a lot.  She also started to eat less each day...her lack of weight gain at her 2 month appt and at other GI appointments worried her doctors.  Again during this time I spent so much time on my knees praying that Heavenly Father would fix her.  Why would he not fix my suffering baby?  I was physically and emotionally exhausted and I still had two other little ones to care for day in and day out.  I can safely say that I have been dealing with a trial.  I count my blessings that what she has isn't life threatening or tragic or a constant scare for her life....but endless hours of crying day in and day out.  Not being able to comfort your new born.  Having a home and other children to care for amidst all of that...was and has been a huge trial for me.  Probably one of my worse ones yet.  She is days shy of 3 months had has been this way pretty much she was born.  That's quite a long time.  So I am tired.  ha ha
After some visits to the doctor, GI doctors, allergists, etc....explaining to each that this was after all my 3rd child and that I am not some crazy mom.  I explained something is wrong with her.  I was told by different doctors,  "sounds behavioral,"  "sounds like personality." blah blah blah.  I am sorry but I was the one who took care of, attempted comfort, and cried with this baby each day.  She was in pain.  I am her mom and I could tell.  Sometimes doctors can be such jerks. lol  But after lots of this...we have finally come to what I hope are solutions.
A few things we've discovered...at this time she is allergic to milk and soy...she was not even tolerating the "hypoallergenic" formula that you can buy at the store.  So her stomach is sensitive to say the least.  Her stool samples showed that her intestines to do not seem to break down foods properly (even hypoallergenic, easy to digest ones) which is what....along with allergies...that has caused her extreme gas pains and stomach discomfort in the past.  She is now on a expensive medical formula called Elecare.  Finally this gave her a noticeable difference in comfort....less pain.
Also, she has pretty severe and painful acid reflux.   The liquid zantac that cured Noah was not enough for her.  So the next thing up is liquid Prilosec.  What a blessing that has been.  My baby is not as uncomfortable at each feeding.  And she is eating so much more and starting to gain weight and look more healthy. 
These things have helped tremendously and it was nice to finally have answers.  Also this past Sunday many family members fasted for her and now 3 days later we have enjoyed the best and most normal day and night since her birth.  Still some discomfort, but a very minimal amount! :) Thanks be to God.  I am hopeful and pray it stays this way.
Now I have been raised to know and believe that trials are ultimately for our good and help us grow spiritually.  So during this time I have been trying to figure out what in the world I was supposed to learn.  Other than that...maybe I don't need that fourth baby....three is good! ha ha :)  I am not sure if this trial is over yet and if she is good to go now.  All of her issues are things that she can grow out of.  My hope is that she will do just that and all will be well.  I guess we will see what the future holds.  But as of right now...these are the things I have learned from this trial.
1. It doesn't matter how much you pray, beg, plead, bargain, etc with Heavenly Father.  It is in his timing that things will get better or be fixed.  Until then you have to just be patient and endure.  Wow that's a hard one to learn.  It's been hard being patient for him to help my baby get better.  But it was a lesson I needed to learn.  Everything is in God's timing not ours.
2.  Service is truly one of the best ways to experience and feel God's love.  My mom has provided a lot of much needed help.  But she also works full time and it was hard for her to help as much as she wanted.  Also, family is supposed to provide service for each other.  I would help her in a heartbeat if she needed help too.  However it wasn't serving family that I needed to learn a lesson on, that comes much easier for me.  I needed to learn and discovered how truly important it is to "serve others."  After a rough week a lady in my ward (church) called me and told me that she was going to watch my kids for a few hours while I either took a nap or got things done.  She didn't care if Kayleigh cried she would be just fine.  It is hard for me to accept service from others.  I have a mentality that I can take care of everything and do not need help...even when I do.  So she took my kids and I came home and cleaned and rested for a little over an hour and it was rejuvenating.  Also when I went to pick up my kids she told me that she was making me dinner.  Her kind act of service was so helpful and truly touched my heart to what service was all about.  Through her kindness and service I felt God's love during this trying time.   I knew he loved me and was looking out for me and Kayleigh.  She also watched my older kids during a doctor appointment for Kayleigh and made dinner for me again within a week of making me dinner the last time.  From this I have finally discovered why service is so important.  Sadly I had not really understood the meaning or reasoning for service before I have had this trial with Kayleigh.  And now I understand it so much more than I ever thought.  Because of this trial I am going to be much more willing to give service to others in need.  I had to experience the joy of receiving service to realize how important it is and how much it truly can effect others in need....not only physically, but mentally, and especially and more importantly spiritually.  Through service I felt God's love.  I hope to be much better at helping others in need now.
3.  I have learned that fasting truly does work.  Kayleigh had been on her new formula and prilosec and was getting better, but it wasn't until a family fast that she truly seemed to be a "happy baby."  This week she has smiled more, been more alert, and slept more peacefully...and that was after the fast.
Now I know that I still have PLENTY to learn and even within the 3 things that I have learned from this trial I probably still have plenty more to learn within each of them.  But this is yet another example of how trials truly do teach us things.  I pray this trial is over and that Kayleigh will be better from here on out.  But even if she is, I know that more trials will be in my future.  And I just hope that I can bear my trials with patience, understanding, and that I will learn what God intends for me to learn from them.

Here is a smiling picture I took of Kayleigh this week.  Sadly her smiling has been a rare occasion.  In fact each smile of her life has brought tears to my eyes because they were so rare.  But she sure has smiled the past few days!  She has been consolable the past few days as well.  She has been...dare I say...a more normal baby the past few days.  And I truly hope it sticks! :) 

1 comment:

  1. God's blessings to all of you and hugs from SE Wisconsin. Great blog post, Erika!

    Lynn

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